When Jaxon Buell was born with microhydranencephaly–a rare condition that prevents the skull and brain from fully forming–it seemed as though there was little hope. “In the first three weeks of Jaxon’s life, when we were still with him in the NICU and there was so much uncertainty, the doctors would continuously prepare us for the worst and to get ready to take Jaxon home simply for ‘comfort care,’” Jaxon’s father, Brandon Buell, told The Huffington Post. “They truly did not expect him to make it very long. Yet, every day that we were with Jaxon, even from the beginning, we were seeing a small glimmer of hope, which has grown more and more each day, and it was that hope in him and the fight he always had that very naturally gave him the nickname of ‘Jaxon Strong.’”
With each passing day, the young boy continues to inspire countless people through his Facebook page. Despite the many setbacks that Jaxon has faced, he approaches each new day with positivity and perseverance. “Our main focus is keeping Jaxon happy and comfortable and doing our best to give him the best life possible,” said Buell. “We know better than anyone else how precious his days are with us. We also keep a broader view, and no matter what happens in the future, we know Jaxon will add something of amazing value and inspiration to this world. He has already touched so many lives, and we could not be more proud.”
On September 26th, Buell added, “Tomorrow, Jax will be 13 months old. It’s hard not to think about how this all started and where we are today. Most importantly, Jaxon is still here with us, still learning, still developing, still thriving. He’s back to smiling at us, always so happy in the morning after he wakes up and takes turns looking at both Mommy’s and Daddy’s face, seemingly as if he is so excited to start another day. […] No matter who you are or what you believe in, it’s clear that Jaxon’s tiny footprints will have a lasting impression on this world, and that he has already touched and inspired more lives in one year than most of us ever will in our lifetime. For his life, I am better, I am blessed, I am grateful, and I am quite simply, one proud ‘Addy’. I love you, son. Well done, big guy.”
As a baby with no skull, Jaxon has overcome tremendous obstacles and is an inspiration to others.
Jaxon Strong: Facebook | GoFundMe
via [The Huffington Post]